Wednesday, 30 March 2011

Wednesday 30th March 2011

Well I've been physio'd and its been confirmed I've got a "full split" not just SPD (which equals pain) not just a partial pelvic split (=pain+slightly separated pelvic bones) but a full split (=agony + is anything connected to anything else in there anymore? no? I thought not) nice to know I've done it in style, no wonder why its crutches and a wheelchair. ::sigh::

About 2 staffers haven't realised how bad it is and tried to get me walking more than I should be but each time another one has rushed over and said, "No! That's a full split there!" At which point looks of horror appear and they back away...

Its been explained to me that all women produce the hormone relaxin during pregnancy to loosen the joints in preparation for labour. When some women produce too much, the joints loosen a bit more, rubbing on each other causing pain when its a bit more the joints loosen yet further resulting in a partial split (few things properly connected) while a full split means virtually nothing is connected. Because this is all related to a hormone, that hormone must recede from the body first so things settle down before any "treatment" can be considered. So in the short term its about helping me cope with mobility aids and eventually once some healing has occurred both the physio and the occupational therapist will work with me and if necessary I'll pursue chiropractic privately.

Later on Wednesday

Had some good news on Adam today. He's responding to treatment and now tests negative for Meningitis so the penicillin is working. The doctors are cautiously confident that he'll live. The sedation is slowly being reduced so at lunchtime we saw him briefly flicker his eyes open for the first time. He might even come off the ventilator by tomorrow. The main huge worry is the level of brain damage - still unknown.

There are two forms of this infection, GBS on its own or the more serious version which is GBS Meningitis which is what Adam has said. The infection itself is very common and 1 in 5 women carry it as just one of the many bugs that live in our bodies but very few babies are susceptible to it so it passes them by. The Consultant explained to us that of the 5000 women who give birth in this hospital every year, 2000 will carry the bug but only 2-3 babies will actually be affected by it and so contract the illness. Adam sadly was one of the 2-3 for this year. 

There are also two ways of getting it - early onset GBS occurs in the first 2 days of life and is contracted from the mother. Late onset is in the following days and may have been contracted in other ways.

One (but only one) of the risk factors is the possibility of ruptured membranes 18-24hrs before delivery, mine ruptured 29hrs before delivery. This is why in the UK if spontaneous contractions start they leave you alone for a while but if your waters break they want you straight into the hospital to be checked for signs of infection. They then leave you alone for .up to 24hrs when they check you again and at at hour 48 if you haven't delivered they induce you (and I had an appointment for Saturday morning but labour started Friday night).

If you're in a risk factor category then antibiotics are started straight away and induction is offered sooner but I wasn't in a risk category so there was no reason to suspect because when tested on Thursday after my waters broke, the result was negative. The doctors do believe it was contracted from me, they just don't understand how, the test might have been a false negative.

Of course I would have taken penicillin during labour if it protected  child. There's no hell on earth worse that sitting in intensive care watching your child on endless monitors and tubes not knowing if he'll live or die and even then not knowing if he'll have life long brain damage.

There's also huge support here for natural unmedicated deliveries so they intervene when they need to but avoid knee jerk reactions.If I ever got pregnant again though I would be both tested ahead of time and treated with penicillin during the whole delivery to try to prevent a recurrence.

However let's get Adam breathing on his own and hopefully without brain damage first...

Later on Wednesday

Adam is being taken off the ventilator tomorrow morning as its believed he can now breathe on his own. This is a huge step forward but also a risky one (and if it doesn't work he'll have to go back on it) Please specifically pray for his safety during this process. Thank you.


One thing that did make me smile today: Adam's sedation is slowly being reduced (he's been in a virtual coma) and he's slowly waking up but the consultant said it was a touch too slow so he needed a stimulant to help him out and ordered a caffeine infusion. Intravenous caffeine in the first week of life (with a milk chaser of course) That's my boy! :-D

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